WELCOME TO OUR WORLD!!!

Welcome to our journey of love, living in the face of loss and just plain living. We've experienced the greatest loss a parent can face--the loss our our baby daughter, Sylvia. She flew to Heaven due to complications of congenital diaphragmatic hernia (CDH) on 2/26/09. We have two "Earth Angel" children, Will and Stella. They have been a great help on this journey. We live a blessed rich life in spite of our loss. We are lucky to be parents to such special children. They are our life. Welcome to our life!

Blog Archive

Wednesday, August 5, 2009

CDH Petition

Hey all--
Click on the following link to view a petition to congress regarding CDH Awareness Day 2010. There is some great info in the petition. I'd love it if you could sign the petition. It only takes a minute, I swear! I see my neighbor and one of Andy's aunts has already signed--yeah! I also posted this link on Facebook. Yes, I'm on facebook now so look me up! Mark your calendars for March 31, 2010. Wear turquoise in honor of Sylvia. That is the cdh awareness color.

http://www.change.org/actions/view/national_congenital_diaphragmatic_hernia_awareness_day_-_march_31_2010

You may have to copy and paste this link. Again, it has some great info in it!

Hope all is well with all of you!
Love,
Beth

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